It's been one of the worst weekends. I am usually positive about dad's recovery, but he is quite ill and doing the best he can-a phrase that puts it all into perspective, thanks to Helene, -a dear family friend who helped me sum up his latest condition. This damn ALS is making the finer things in life we take for granted like eating, swallowing, and talking a struggle. He has lost weight and the stomach pain is relentless.
To make the situation worse, he was placed in a long term nursing home unit at Heritage for 2 days. No one knew how to care for dad and all of his needs. I am sure its a great facility, it's just not for dad who needs a low nurse/aid ratio. Very upsetting.
So on a positive note, we are desperately seeking happiness. Any amount will do.
Happiness this weekend was...
1. A surprise visit from George while at Herirage -an aid who helped dad when he was in the rehab unit for 6 weeks. They have such a great bond that he calls mom and dad "uncle justin and aunt marcia" as he is their newly added nephew! My dad lit up the room when George strolled in. I can't thank him enough for the happiness he brings with him.
2. Eating spaghetti o's
3. Hanging out w dad and watching The Three Stooges movie and laughing until he cries.
4. Getting his teeth brushed
5. Enjoying a Wendys Frosty :)
6. Sleeping through the night-first full nights sleep since July 4th
7. Jello
8. Yogurt
9. Spending time with his daughters...lol
10. Being home again!
